Access Changes Lives
Globally, 300,000 people are currently living with Duchenne Muscular Dystrophy. Did you know that one in 5000 newborn boys in the world is affected by Duchenne Muscular Dystrophy? Living with Duchenne Muscular Dystrophy is a journey marked by both physical challenges and emotional resilience. Historically, individuals with DMD lived only into their late teens or early 20s. Today, modern standards of care extend average survival well into the late 20s and early 30s, with select patients reaching their 40s. Duchenne Muscular Dystrophy (DMD) is a rare progressive disorder. The first symptoms of DMD are normally identified in early childhood by parents. People with DMD are missing muscle-protecting protein. This is due to a fault in the gene producing dystrophin. Importantly those living with DMD have issues with muscles becoming weaker over time until they affect the whole body. It is caused by a mutation on the X-chromosome; that is why mainly males are affected. First walking becomes ...